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Follow on Google News | Help Fight A Little Girl's Cancer With CoffeeBy: Eight Mugs http://eightmugs.com/ 5 year old Desi was diagnosed with Stage IV High Risk Neuroblastoma & began 21 weeks of treatment on 4/23/14. On April 21, 2014 (Daddy's birthday), Desirae was diagnosed with Stage 4 High Risk Neuroblastoma. It had spread to her bone marrow, her lymph nodes and in some areas of her bones. We were told days before, that her tumor was inoperable due to the size (10 cm x 9.5) cm and the location (starts from left adrenal gland goes across her abdomen, downwards towards her trunk and is growing and wrapping around aorta, which is your main and largest blood vessel in your body). Treatment began immediately. We were looking at 5 rounds of chemotherapy, followed by a stem-cell transplant, followed by radiation, followed by immunotherapy. At least 8 months... At least. Desi just completed round one of her chemotherapy. We are suppose to go home for a 3-wk break but that hasn't happened as Desi's had complications and high fevers. There's an entire new world ahead of us now. One that is uncertain and very scary. One thing people asked the most was, well what's her prognosis? We told them this... "We didn't ask to hear about statistics or numbers, we don't care about those. Our first and ONLY relevant question was, "Okay, so what are we gonna do to save our daughters life and when are we gonna do it?!!!!!!" We needed to know that there was still a chance, no matter how small it was... Our daughter, this amazing, wonderful, beautiful human being, IS gonna be THE ONE to defy those odds. Hopefully you've found her page because you want to join in her fight and in our fight. To tackling this ravaging disease that leaves families powerless to it. Welcome to the battle. This is our daughter, Desirae Ava Grace Cechin. She is our world and the greatest love of our lives. End
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